Frequently Asked Questions Find everything you need to know about coeliac disease, the gluten free diet and the work we do.
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Do I need to set up a new password?
No, your existing Coeliac UK login details will work (the same details you use to log in to our website).
If you’ve forgotten your login details you can follow the forgotten password link on the first screen of the app and create a new password.
What’s new on the website?
Our main aim was to make the website easier for you to navigate and find the information that’s important to you. We also wanted to make the website better on mobile and tablet devices as more than half of our community are accessing the website this way.
We’ve collected everything your membership fee covers into one place to make it easier for you to access the information you want, so head to Your Gluten free Hub for all of your member benefits, including your Food and Drink Information, Home of Gluten free Recipes, Eating Out Venue Guide and much more! The rest of the site has been reworked to give it a fresh feel and simplified structure so it’s easier to find the information to live well, gluten free.
Where has my Scrapbook gone?
We’ve collected all of your personalised bits of the website into the My Account section. Simply log in using the same details you had on the previous website and you’ll be able to get all the same functionality as before.
You can now use ‘My favourites’ to add items you’re interested in, rather than ‘Scrapbook’ and access them from your account using the My favourites button. Here you can also update your health information, access your membership benefits in one place, discover what support is available to you, and much more. And if you have things saved to your Scrapbook these will now be listed in the My favourites section of My account. The only thing that might be different is something like a venue or document which we might have removed from the website since the last time you accessed your Scrapbook.
Log in and check it out!
I’m a member, do I need a new log in?
No, if your membership is up to date and you have activated your online account, you’ll still be able to log in using your existing email address and password.
If you’ve forgotten your password you can reset it here.
What’s new on the website?
Our main aim was to make the website easier for you to navigate and find the information that’s important to you. We also wanted to make the website better on mobile and tablet devices as more than half of our community are accessing the website this way.
We’ve collected everything your membership fee covers into one place to make it easier for you to access the information you want, so head to Your Gluten free Hub for all of your member benefits, including your Food and Drink Information, Home of Gluten free Recipes, Eating Out Venue Guide and much more! The rest of the site has been reworked to give it a fresh feel and simplified structure so it’s easier to find the information to live well, gluten free.
I’m a member, do I need a new log in?
No, if your membership is up to date and you have activated your online account, you’ll still be able to log in using your existing email address and password.
If you’ve forgotten your password you can reset it here.
Do I still need to update my Food and Drink Guide?
It is important to check for updates as products do change and many new products are added throughout the year.
Product information on our digital versions are updated in real time however we also provide monthly updates to the Food and Drink Guide and these can be found:
- on our Food and Drink Information page on our website
- by following the links on our monthly email newsletters
- through our Live Well Gluten Free app
- on our social media platforms.
I’m sure like most people, I am really interested in the why? Why have I suddenly got coeliac disease - I’m 41 and very recently diagnosed. I have read that you can be born with the coeliac gene, so firstly is this true? And secondly, I’ve read that things like heavy stress on the body and pregnancy can trigger the autoimmune response, is this also true?
Many people are born with genes that can increase the risk for coeliac disease. However, this does not mean that they go on to develop the disease. Other factors outside of the genetics of a person could also play a role. Unfortunately, there is not a lot known about the factors other than genes that could trigger or increase risk of getting coeliac disease.
So, increased levels of stress or childbirth could potentially play a role, but there is no scientific evidence that supports this. A lot of groups are trying to understand the factors other than genetics that play a role, so hopefully we will know more in the future.
I would like to know why all three of my young children have coeliac disease via my husband but none of his nieces or nephews have been diagnosed even though they have parents and grandparents with coeliac disease? Also what is the chance of them going on to develop another autoimmune disease as my middle daughter has continued having problems? And finally, do we have specialist coeliac research teams here in the UK?
Although coeliac disease is clearly in part a genetic disease, genetics alone is not enough to explain why one person gets coeliac disease and another does not. Even in genetically identical people, monozygotic twins, one twin can have coeliac disease and the other may not. Other factors from our environment may also play a role, and these could be different for each person as well. What these factors are is still mostly unclear, so we're unfortunately not able to reduce the risk of getting coeliac disease yet.
With regards to your second question: the chances for getting other immune related diseases in coeliac disease patients are indeed increased. Examples are autoimmune thyroid disease and type 1 diabetes, but there are others as well. The exact chances of developing another autoimmune disease are hard to estimate and differ greatly for different autoimmune diseases, so unfortunately, I can't give you a very clear answer.
Yes, there are researchers in the UK exploring coeliac disease too. Coeliac UK funded researcher, Professor David van Heel also looked into the genetic variants for coeliac disease, you can read about this research on the website. Interestingly, he collaborated with the team at Groningen. More recently, Professor Ramesh Arasaradnam completed a Coeliac UK project exploring the microbiome - find out more information on this project here.