Frequently Asked Questions Find everything you need to know about coeliac disease, the gluten free diet and the work we do.
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How do I know if I have access to prescriptions?
If your doctor has diagnosed you with coeliac disease or dermatitis herpetiformis, you might be able to access gluten free staple foods on prescription. If you live in an eligible area, your GP can write a prescription for gluten free staple food which you can collect from your pharmacist, just like getting medicine on prescription. Find out if you have access to gluten free staples on prescription in your area using our postcode tool here
Why is gluten free more expensive?
There are several factors that may influence the price of gluten free food products and Coeliac UK continues to invite those industry partners who have yet to engage with the charity to join with us to tackle this issue. Factors that can influence the price of gluten free food include:
Production: to ensure that gluten free food is produced to a high standard, and with no risk of cross contamination, there are increased costs involved in the production process and the production environment itself. Gluten free production also often requires different machinery and processes in order to mimic the qualities of gluten in bread.
Batch sizes: gluten free foods are manufactured in smaller quantities as the demand for them is less than that for gluten containing and this has associated increased cost. The smaller the volumes, the larger some of these costs can be.
Gluten testing: costs are involved in analysing products to make sure the gluten content is below the legal threshold for making a gluten free claim, which is no more than 20 parts per million of gluten.
Product development: there are challenges to removing gluten from products and manufacturers explore and invest in new technologies, recipes, and methods.
Ingredients: gluten free products are often made with a larger combination of ingredients, compared with gluten containing equivalents, to achieve the similar product characteristics of those made with the gluten containing grains wheat, barley, and rye, such as bread, crackers and breakfast cereals. These alternative ingredients are generally more expensive, and often have to be sourced from other parts of the world, which influences the cost of the gluten free product.
Packaging: segregated packaging areas and differences in shelf life also have an impact on cost.
Transport, distribution and retail: there are a number of further costs associated with getting the product from the factory floor to the supermarket shelf. This includes transport, labour, logistics and supply chain costs.
For an insight into what goes into manufacturing gluten free staples products, the charity spoke to gluten free manufacturer, Warburtons in our recent blog
What is the petition and how can I sign it?
Coeliac UK knows gluten free staple substitutes play a crucial role in supporting people with coeliac disease to stay healthy, yet they are significantly more expensive and harder to find available on the shelves than gluten containing equivalents.
For years, the NHS has been instrumental in supporting those with coeliac disease by providing access to gluten free food on prescription. However, recent changes in Integrated Care Board (ICB) policies and uncertainties surrounding government funding jeopardise this vital support system. Whilst this funding remains in place in Scotland, Wales and Northern Ireland, across England, many ICBs have taken the decision to withdraw much needed provision often based on faulty evidence and ignoring the views of the public on the impact of removal.
We cannot stand by while patients with coeliac disease are left without the support they need to stay healthy. It's time to hold the Government accountable for safeguarding the health and wellbeing of vulnerable members of our community.
Join us in calling on the UK Government to uphold its commitment to health equality and ensure that those with coeliac disease have access to the gluten free food they need to thrive. Sign our petition to make it clear to the Government that protecting access to gluten free food on NHS prescription is invaluable for keeping people with coeliac disease safe and well. Help us get to 10,000 signatures so we can take the petition direct to the Government and make our voices heard.
You can sign the petition here: www.change.org/p/act-now-to-protect-critical-nhs-prescription-support-for-those-with-coeliac-disease
Please note when you sign the petition, you’ll need to add your name and email address and you’ll be sent an email to confirm your signature. Be sure to click the button on the email or your signature won’t be added!
Please also note if you choose to ‘Chip in’ when you sign the petition, the money will go to change.org. If you'd like to support Coeliac UK please visit www.coeliac.org.uk/appeal
How do I login?
Have you activated your account?
You need to activate your account to generate your login details to access the Member area of the website and your app.
If you’ve already activated...
...then you login with the email address you have given us and the password you created. This will be a minimum of eight characters, at least one will be a capital letter and it will include a number. Please double the check the details you are trying to login with.
If you have forgotten your password you can reset it here.
If your membership has lapsed then you will not be able to login to the app. You can renew easily online by logging to our website and following the steps to renew your membership. Once you’ve renewed you will be able to login to the app.
If you have tried all of the above and it still doesn’t work email us or call us on 0333 332 2033.
What dietary preferences do I need to set up in my Live Well Gluten Free app?
The ‘gluten’ and ‘may contain’ filters are set as default within the dietary preferences area within the app. If you also what to exclude products that contain certain products such ‘Codex wheat starch’ or ‘Gluten free barley’ then you need to switch the ‘Extra gluten’ filter to ‘On’. You can also choose to exclude any of the 14 recognised allergens as appropriate by switching the filter to ‘On’ so all search results will be tailored to your individual needs.
Does ‘product not found’ in your Food Information Service mean it’s not suitable for a gluten free diet?
Our Food Information Service provides information on over 150,000 food and drink products available in the UK. ‘Product not found’ means that the manufacturer has not provided us with any information about the product at that time. We recommend reviewing the on pack information to check it’s suitability. You can find our labelling video to help you here www.coeliac.org.uk/food-labelling-update/. If you’re still unsure, please get in touch via our Helpline and our team will be able to assist you.
What is Precautionary allergen labelling?
The Food Standards Agency provides guidance to manufacturers on when to label a product with a ‘may contain’ statement, such as:
- may contain wheat (gluten) Made in a factory that handles gluten
- not suitable for consumers with coeliac disease
When you see one of these statements or something similar on a product, the manufacturer should have carried out a risk assessment and has decided that there is a genuine risk that the product could be contaminated with a cereal containing gluten and the risk cannot be removed. In some cases the manufacturer may be able to provide more information on how the product is produced to help you make a decision about whether to eat the product or not.
If you see a product labelled gluten free but also with a ‘may contain’ statement for cereals containing gluten, this indicates the product has met the requirements of the gluten free law. If a manufacturer chooses to include a ‘may contain’ statement alongside a ‘gluten free’, the gluten free claim must be maintained and contain 20 ppm or less of gluten.
If you have coeliac disease or are following a gluten free diet, we do not recommend consuming products with a ‘may contain’ statement, for cereals containing gluten, based on the guidance that the Food Standards Agency provides to Food Businesses. The use of both a Gluten Free statement and a precautionary allergen statement
There are instances where manufacturers choose to label products with both a gluten free statement and a ‘may contain’ statement, for example:
Gluten Free and May contain Wheat.
Although this may appear conflicting, the gluten free label ensures the product meets the requirements of the law. The ‘may contain’ statement for ‘wheat’ is to alert those with a wheat allergy. In this scenario the gluten free claim will always supersede the ‘may contain’ statement and remains suitable for a person with coeliac disease, maintaining 20 ppm or less of gluten.
Click here for further information on food labelling