• People with undiagnosed coeliac disease or those who are not following a strict gluten free diet are at a higher risk of long term complications, including osteoporosis, ulcerative jejunitis, intestinal malignancy, functional hyposplenism, vitamin D deficiency and iron deficiency 
• In children, delayed diagnosis can also lead to faltering growth and delayed puberty
• Refractory coeliac disease is a very rare complication of coeliac disease that is associated with an increased risk of malignancy. A Rare Disease Collaborative Network on refractory coeliac disease has been established to accelerate research into this condition.

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